In addition to her legal work, Ms. Burgess has been an unwavering patient advocate, as the Founder of a non-profit organization dedicated to finding a treatment and cure for a form of Muscular Dystrophy (FSHD). Ms. Burgess later expanded her patient advocacy work as a Director of Patient Advocacy and Public Affairs for a pharmaceutical company. She has worked with international leaders in the scientific community and helped to shape legislative policy in pharmaceuticals and rare diseases.